Recent research on home rehabilitation and nursing for spinal muscular atrophy
10.7499/j.issn.1008-8830.2310037
- VernacularTitle:脊髓性肌萎缩症家庭康复与护理的研究进展
- Author:
Ming-Yue LENG
1
;
Hong-Hao PENG
;
Zhi-Feng WU
Author Information
1. 陆军军医大学第二附属医院儿科,重庆 400037
- Keywords:
Spinal muscular atrophy;
Home rehabilitation;
Quality of life assessment
- From:
Chinese Journal of Contemporary Pediatrics
2024;26(4):420-424
- CountryChina
- Language:Chinese
-
Abstract:
Spinal muscular atrophy(SMA)is an autosomal recessive neuromuscular disorder.With the emergence of disease-modifying therapies,the prognosis of SMA has significantly improved,drawing increased attention to the importance of home rehabilitation and nursing management.Long-term,standardized home rehabilitation and nursing can delay the progression of SMA,enhance the psychological well-being,and improve the quality of life of both patients and caregivers.This article provides an overview of the goals of home rehabilitation,basic functional training methods,respiratory management,and nutritional management for SMA patients,as well as psychological health issues,emphasizing the significance of obtaining appropriate home rehabilitation and support during the care process.[Chinese Journal of Contemporary Pediatrics,2024,26(4):420-424]
