A phenomenological study on disease benefit finding of primary caregivers of children with cerebral palsy
10.3760/cma.j.cn115682-20210529-02328
- VernacularTitle:脑瘫患儿主要照顾者疾病获益感的现象学研究
- Author:
Xuemin LI
1
;
Xia LI
;
Chenjun WANG
;
Lili ZHANG
;
Yaoyao YE
Author Information
1. 温州医科大学附属第二医院/育英儿童医院儿童康复科，温州 325000
- Keywords:
Cerebral palsy;
Qualitative research;
Primary caregivers;
Disease benefit finding;
Phenomenological research
- From:
Chinese Journal of Modern Nursing
2022;28(1):9-14
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To investigate disease benefit finding of primary caregivers of children with cerebral palsy, in order to provide reference for clinical diagnosis, treatment and nursing of children with cerebral palsy.Methods:Using the phenomenological method of qualitative research, a total of 12 primary caregivers of children with cerebral palsy were selected from the outpatient and inpatient wards of Department of Child Rehabilitation in the Second Affiliated Hospital of Wenzhou Medical University/Yuying Children's Hospital from October 2020 to February 2021 by the purposive sampling method. Semi-structured interviews were conducted to understand the feelings of the primary caregivers when their children were diagnosed with cerebral palsy, how their thoughts changed during care and what coping methods they adopted. Colaizzi 7-step content analysis was used to analyze the collected text data.Results:The disease benefit finding of primary caregivers of children with cerebral palsy was mainly reflected in self-growth (cultivating healthy behaviors, learning to face and accept reality and enhancing emotional regulation), positive prospects for future life (cherishing the present and re-planning life, looking at things from a positive perspective, strengthening beliefs and regaining hope), improvement of interpersonal relationships (closer husband and wife relationship, more harmonious relationship between family members, feeling the care of medical staff and support and understanding from peers) and diversified social support (crowdfunding platforms provided by social welfare projects, government subsidy) .Conclusions:The disease benefit finding of primary caregivers of children with cerebral palsy is mainly manifested in four aspects, including self-growth, changes in life attitudes, improvement of interpersonal relationships and social support. Medical staff can carry out psychological interventions for the main caregivers of children with cerebral palsy from the above four aspects, relieve their negative emotions, improve their psychological adjustment capabilities and enhance their disease benefit finding.
