Experience and feelings of informal caregivers of patients with intracranial tumors: a systematic review
10.3760/cma.j.cn115682-20210212-00698
- VernacularTitle:颅内肿瘤患者非正式照顾者体验和感受质性研究的系统评价
- Author:
Jinfeng ZHU
1
;
Lu CHEN
;
Fang WANG
;
Lixinbei SHENG
;
Hengdan DI
Author Information
1. 南京大学医学院附属鼓楼医院在读硕士，南京 210008
- Keywords:
Brain neoplasms;
Informal caregiver;
Qualitative research;
Systematic review;
Meta-integration
- From:
Chinese Journal of Modern Nursing
2021;27(31):4256-4262
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To systematically integrate the experience and feelings of informal caregivers of patients with intracranial tumors.Methods:Qualitative researches on the real experience and inner needs of informal family caregivers of patients with intracranial tumors were retrieved in the PubMed, Web of Science, China National Knowledge Infrastructure (CNKI) , WanFang Data, China Biomedical Database and VIP Chinese Journal Database by computer. The search time was from the establishment of the database to May 31, 2021. After screening and analysis, the critical appraisal tool for qualitative research (2017) of the Joanna Briggs Institute (JBI) Evidence-based Health Center in Australia were used to evaluate the articles and the results were Meta-integrated.Results:A total of 14 articles meeting the criteria were included. A total of 48 complete research themes were refined, and they were summarized and combined to form 3 comprehensive Meta-integration results and 4 new categories. The 3 Meta-integration results were that the caregiver experienced the shock, sadness, disbelief and hope in the early stage of diagnosis, and began to assume responsibility and learn to become a caregiver's psychological and emotional changes; the caregiver's family role and living environment changed, affecting the quality of life of caregivers; caregivers lacked information, care experience and social support.Conclusions:The quality of life of informal caregivers of patients with intracranial tumors and the changes in family functions have attracted attention. Social and medical workers should combine our country's cultural background to formulate effective intervention strategies and related health policies for the difficulties and challenges faced by this special population.
