Experience and needs of symptom management care for parents of children with cancer during chemotherapy: a qualitative study
10.3760/cma.j.cn115682-20200721-04513
- VernacularTitle:癌症患儿父母化疗期间症状管理照护体验及需求的质性研究
- Author:
Yanyan LIU
1
;
Nanping SHEN
;
Jing SUN
;
Haishan RUAN
;
Yiming LIU
Author Information
1. 上海交通大学护理学院，上海 200025
- Keywords:
Child;
Neoplasms;
Caregivers;
Symptom management;
Qualitative research
- From:
Chinese Journal of Modern Nursing
2020;26(35):4914-4918
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the experience and needs of symptom management care of parents of cancer children during chemotherapy so as to provide a reference for improving the level of symptom management.Methods:Between November 2018 and April 2019, phenomenological research method was used to conduct a semi-structured interview with 14 parents of cancer children in the stage of chemotherapy from two hospitals. Colaizzi seven step analysis was used to the data analysis.Results:The care experience of symptoms and adverse reactions of parents of children with cancer during chemotherapy was refined into two themes, namely the process of learning and growth, and the transformation of psychological adaptation. The main needs of care were information needs, communication needs and psychological support needs.Conclusions:Parents of children with cancer are learning and growing up in the process of treatment and symptom care, and there are many needs. Medical and nursing staff should work closely with the children and their parents to meet the parents' needs for knowledge, communication and psychological support for symptom care, improve the care experience of parents and alleviate the pain of children.
