Qualitative research on experience of caregivers of palliative care for minors: a Meta synthesis
10.3760/cma.j.cn211501-20240301-00460
- VernacularTitle:未成年人安宁疗护照顾者照护体验质性研究的Meta整合
- Author:
Jialu KANG
1
;
Xiaoxiao WU
;
Cuiting LYU
;
Xinbo DUAN
;
Wei LIU
Author Information
1. 河北中医药大学护理学院，石家庄 050200
- Keywords:
Qualitative research;
Minors;
Palliative care;
Experience;
Meta synthesis
- From:
Chinese Journal of Practical Nursing
2024;40(32):2545-2552
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To systematically review the qualitative research on the care experience of caregivers of palliative care for minors, in order to provide a reference for formulating a care plan that is more in line with the needs of palliative care for minors and their families.Methods:The Cochrane Library, Australia Joanna Briggs Institute Evidence-based Health Care Center Library, Embase, PubMed and Web of Science, CINAHL, China National Knowledge Infrastructure, Wanfang Database, VIP Database and China Biology Medicine Disc were searched by computer for literature on qualitative research on care experience of underage hospice care caregivers from the establishment of the database to December 30, 2023.Results:A total of 11 articles were included and 70 research results were extracted, which were summarized into 7 new categories and formed 2 integrated results: professional caregivers and relative caregivers had multiple care burden, and need multiple care support; professional caregivers and relative caregivers can shoulder the care responsibility of children together, actively respond to the difficulties in care, gain personal care experience and growth.Conclusions:Hospice care for minors has its own characteristics, and caregivers have various care burdens and needs. Special attention should be paid to the emotional experience and care demands of caregivers, and targeted support and protection should be provided to promote the construction of hospice care team for minors in China and improve the level of hospice care for minors in China.
