A qualitative study of self-management dilemmas in adolescents with type 1 diabetes mellitus transitioning to adult medical care
10.3760/cma.j.cn211501-20240408-00829
- VernacularTitle:青少年1型糖尿病患者向成人医疗过渡期自我管理面临困境的质性研究
- Author:
Jing WU
1
;
Chunyan LIU
;
Yongqi HUANG
;
Ru DING
;
Qingyin HUANG
;
Yongmei LU
Author Information
1. 广州中医药大学护理学院，广州 510006
- Keywords:
Qualitative research;
Diabetes mellitus, type 1;
Adolescent;
Adult transition;
Self-management
- From:
Chinese Journal of Practical Nursing
2024;40(31):2455-2461
- CountryChina
- Language:Chinese
-
Abstract:
Objective:Exploring the dilemmas faced by adolescents with type 1 diabetes mellitus in self-management during the transition to adult healthcare, to inform healthcare professionals in the delivery of transitional care interventions.Methods:Using descriptive qualitative research methods, in-depth interviews were conducted from August to December 2023 to adolescents with type 1 diabetes mellitus (selected by objective sampling) who met the inclusion and exclusion criteria in the Department of Endocrinology of the First Affiliated Hospital of Guangzhou University of Traditional Chinese Medicine and the Shenzhen Children′s Hospital, and the data were analysed inductively using directed content analysis.Results:A total of 12 adolescents with type 1 diabetes mellitus were included for interview, 6 males and 6 females, aged 12-18 years. The self-management dilemmas for adolescents with type 1 diabetes in the transition to adult healthcare can be summarised into 4 themes and 10 sub-themes: disease management dilemmas (weak awareness of disease management, insufficient disease-related knowledge and competence, low adherence to disease management, and restriction of daily activities), role adaptation difficulties (lack of perceived transition to the healthcare role, difficulty in transitioning to the family role, and maladaptation to the social role), negative emotions Inadequate social support system (lack of school support, limited accessibility of social organisations, insufficient socio-economic support).Conclusions:Adolescents with type 1 diabetes mellitus face multiple dilemmas in disease self-management during the transition to adult healthcare, and healthcare professionals should pay attention to transition self-management education, improve patients′ awareness of transition self-management and their ability to participate in it, formulate a transition preparation plan, build an emotional support network, and improve the social security system, so as to help juvenile patients with type 1 diabetes master the method of self-management and make a successful transition to adulthood.
