Perceptions and needs of family caregivers of terminal cancer patients for digital health interventions: a qualitative study
10.3760/cma.j.cn211501-20240417-00929
- VernacularTitle:终末期肿瘤患者主要照顾者对数字化健康干预认知及需求的质性研究
- Author:
Yawen XU
1
;
Ying WANG
;
Yongyi CHEN
;
Yazhou XIAO
;
Junchen GUO
;
Yang LIU
;
Hailun ZHAO
Author Information
1. 湖南省肿瘤医院护理教研室，长沙 410013
- Keywords:
Qualitative research;
Digital health interventions;
Internet;
Neoplasms;
Family caregivers;
Relatives
- From:
Chinese Journal of Practical Nursing
2024;40(31):2448-2454
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To understand the cognition of the family caregivers of terminal cancer patients on digital health intervention, to clarify their actual needs, and to analyze the obstacles to their acceptance of digital health intervention, so as to develop a digital health intervention plan for the family caregivers of terminal cancer patients.Methods:From February 2024 to March 2024, the family caregivers of 16 patients with terminal cancer in Hunan Cancer Hospital Pain Hospice Ward were selected by objective sampling, who met the inclusion and exclusion criteria were interviewed in a semi-structured manner about the cognition and needs of digital health intervention, and the interview contents were sorted and analyzed using the Colaizzi7 step method.Results:A total of 16 family caregivers of terminal cancer patients, 4 males and 12 females, aged 26-55 years, were interviewed. Four themes were distilled from the interview results: family caregivers of terminally cancer patients agree on the importance of digital health interventions; lack of awareness of digital health interventions; expectations of digital health interventions; and possible confounders affecting digital health interventions.Conclusions:The family caregivers of terminal cancer patients had insufficient awareness of digital health intervention, but all showed affirmation of the development of digital health intervention services. It is recommended to actively improve the basic conditions of digital health services, strengthen publicity, raise the level of awareness of the family caregivers, and positively overcome the relevant interfering factors, so as to gradually promote the development of digital health services.
