Lifting Shadows off the End-of-Life Care: Hopes and Beliefs on Video Decision Support Tools for Advance Care Planning.
10.14475/kjhpc.2016.19.1.1
- Author:
Heon Jae JEONG
1
;
Hyeyeon YOON
Author Information
1. The Care Quality Research Group, Philadelphia, Pennsylvania, USA. hjeong1@jhu.edu
- Publication Type:Review
- Keywords:
Advance care planning;
Videotape recording;
Decision making;
Clinical decision support systems;
Palliative care;
Terminal care
- MeSH:
Advance Care Planning*;
Decision Making;
Decision Support Systems, Clinical;
Decision Support Techniques;
Hope*;
Humans;
Lifting*;
Nimodipine;
Palliative Care;
Shock;
Terminal Care;
Videotape Recording
- From:Korean Journal of Hospice and Palliative Care
2016;19(1):1-4
- CountryRepublic of Korea
- Language:English
-
Abstract:
As advance care planning is taking center stage in the field of end-of-life care, various tools have been developed to aid in the often emotional and difficult decision-making process. Video decision support tools are one of the most promising means of assistance, of which the modus operandi is to provide more comprehensive and precise information of medical procedures to patients and their families, allowing them to make better informed decisions. Despite such value, some are concerned about its potential negative impact. For example, video footages of some procedures may be shocking and unpalatable to non-medical professionals, and patients and families may refuse the procedures. One approach to soften the sometimes unpleasant visual of medical procedures is to show less aggressive or more relaxing scenes. Yet another potential issue is that the objectivity of video decision support tools might be vulnerable to the very stakeholders who were involved in the development. Some might argue that having multiple stakeholders may function as checks and balances and provide collective wisdom, but we should provide more systematic guarantee on the objectivity of the visual decision aids. Because the decision of the modality of an individual's death is the last and most significant choice in one's life, no party should exert their influence on such a delicate decision. With carefully designed video decision support tools, our patients will live the last moments of their lives with dignity, as they deserve.
