Research on policy framework, standards system and application of disability data
10.3969/j.issn.1006-9771.2024.12.001
- VernacularTitle:残疾数据政策、标准体系与数据应用研究
- Author:
Yaru YANG
1
;
Zhuoying QIU
1
;
Zhongyan WANG
1
;
Di CHEN
2
;
Jian YANG
1
;
Qi JING
2
;
Na AN
3
;
Tiantian WAN
1
;
Xiaojia XIN
4
;
Xiaoqin LIU
1
;
Yuanjun DONG
1
;
Xiangxia REN
1
;
Ye LIU
2
;
Yifan TIAN
2
;
Xueli LÜ
5
Author Information
1. School of Social Development, International Center for Rehabilitation Policy and ICF Research, University of Health and Rehabilitation Sciences, Qingdao, Shandong266113, China
2. WHO-FIC Collaborating Center in China, Beijing100068, China
3. Public Education Department, Qingdao Health Technology and Industrial Policy Research Base, University of Health and Rehabilitation Sciences, Qingdao, Shandong266113, China
4. Shandong Province Population Health and Public Policy Soft Science Base, University of Health and Rehabilitation Sciences, Qingdao, Shandong266113, China
5. Rehabilitation Information Research Department, China Rehabilitation Science Institute, Beijing100068, China
- Publication Type:Journal Article
- Keywords:
disability data policy;
disability data standard system;
data-driven disability services
- From:
Chinese Journal of Rehabilitation Theory and Practice
2024;30(12):1365-1375
- CountryChina
- Language:Chinese
-
Abstract:
ObjectiveTo systematically analyze international disability data policies and standards, as well as the application of disability data in policymaking, service optimization and inclusive social development, and to clarify the importance of international disability data policies, standard systems and disability data application for the development of disability-related services. MethodsThrough the analysis of policy content and research on the data standard system, this study explored the disability data policy framework, standard system and technical path of data interoperability and integration of international organizations including the United Nations (United Nations Statistics Division and United Nations Children's Fund), World Health Orgnization, United Nations Educational Scientific and Cultural Organization, and International Labour Organization. ResultsInternational organizations established disability data policy frameworks based on their respective mandates, involving data and service development, data standards, data governance, and data application. The international community established a disability data standard system for disability data collection, coding, exchange, interoperability, statistical analysis, data fusion and application. Building a standardized disability data standard system based on the framework of international health classification standards such as International Classification of Functioning, Disability and Health, and International Classification of Diseases, Eleventh Revision would ensure the consistency of cross-national disability data policies, and the interoperability and comparability of disability data, promoting the development of data-driven disability-related services, accurately identifying the service needs of people with disabilities, and optimizing service provision, thereby improving the quality of life and social participation of people with disabilities. ConclusionThe construction and implementation of international disability data policies and data standards have promoted the standardization and interoperability of disability data. With the application of big data, artificial intelligence and blockchain technologies in disability data, international cooperation and cross-industry data fusion in the field of disability data have been promoted, further promoting the development of data-driven disability services, ensuring equal opportunities for people with disabilities to enjoy service resources, and improving the coverage and quality of disability services.
