Practices on"Center-Multidisciplinary Team"Structure for Rare Disease Management in General Hospitals
- VernacularTitle:基于"中心—多学科诊疗团队"架构的综合医院罕见病管理探索
- Author:
Yu ZHUANG
1
;
Yuan ZHONG
;
Xinxia WU
;
Xuedong XU
;
Rong MU
;
Xiaohui ZHU
;
Rong LI
;
Wei FU
Author Information
1. 北京大学第三医院 北京 100191
- Keywords:
comprehensive hospital;
center for rare disease;
multidisciplinary teams;
interrupted time series analysis
- From:
Chinese Hospital Management
2024;44(9):37-40
- CountryChina
- Language:Chinese
-
Abstract:
Objectives It was a preliminary exploration on rare disease management of comprehensive hospital based on the"Center-Multidisciplinary Team"structure.Methods By applying interrupted time series analysis,the characteristics and related medical service of rare disease patients discharged from sample hospitals from 2021 to 2023 were measured.Results The results showed that the hospital served 19 825 rare disease patients from 2021 to 2023.The proportion of patients whose main diagnosis were rare diseases was approximately 27％.The interrupted time series technique indicated that the expected proportion of rare disease patients increased instantly by 1.89 thousand points.The capability to diagnose has significantly improved,with a growing trend on volume of bioinformatics analysis services for rare diseases patients.Conclusion The rare disease management based on the"Center-Team"structure can increase the attention of medical staff to rare diseases,strengthen the diagnostic capacity of rare diseases,and make patient management more continuous and disciplinary co-operation more efficient without significantly increasing the input burden on hospitals.
