Meta-synthesis of qualitative research on decision⁃making participation experience of parents of terminally ill neonates in NICU
10.12026/j.issn.1001-8565.2024.10.14
- VernacularTitle:NICU临终新生儿父母决策参与体验质性研究的Meta整合
- Author:
Jing WU
1
;
Xianhong ZHANG
1
;
Lu WEI
1
;
Xiaochuan ZHU
1
Author Information
1. Neonatal Diagnosis and Treatment Center， Children’s Hospital of Chongqing Medical University/ Key Laboratory of Child Developmental Diseases Research， Ministry of Education /National Clinical Research Center for Child Health and Disorders/China International Science and Technology Cooperation Base of Child Development and Critical Disorders/Chongqing Key Laboratory of Pediatrics， Chongqing 400014， China
- Publication Type:Journal Article
- Keywords:
neonatal intensive care unit;
parents of terminally ill neonates;
decision-making participation;
decision-making experience;
qualitative study;
meta-synthesis
- From:
Chinese Medical Ethics
2024;37(10):1213-1221
- CountryChina
- Language:Chinese
-
Abstract:
ObjectiveTo systematically evaluate the qualitative research on the decision-making participation experience of parents of terminally ill neonates in neonatal intensive care unit （NICU）. MethodsQualitative research on the decision-making participation experience of parents of terminally ill neonates in NICU were searched from PubMed， Web of Science， Embase， CINAHL， Cochrane Library， Sinomed， China National Knowledge Infrastructure （CNKI）， Wanfang， and VIP databases， with the search period from the establishment of the database to August 2023. The quality of the literature was evaluated using the qualitative research quality evaluation standard of the Joanna Briggs Institute （JBI） in Australia， and the literature was summarized using a synthesizing meta-synthesis method. ResultsA total of 13 articles of literature were included， as well as 33 results were extracted and classified into 12 new categories and synthesized into 4 integrative outcomes， including participation tendency， role experience， obstacles， and needs on parental decision-making of terminally ill neonates. ConclusionParents of terminally ill neonates in NICU face difficult decision-making choices. Medical staff need to work together with parents to determine their ideal role in decision-making and develop personalized communication content. Society， hospitals， and families need to create a supportive social and psychological environment to provide parents with information and emotional support， as well as improve the coping ability of parents of terminally ill neonates in decision-making.
