Present Situation and Countermeasures of China's Legal Responses to Rare Diseases
10.12376/j.issn.2097-0501.2024.03.021
- VernacularTitle:中国罕见病法律制度现状与对策
- Author:
Shiyao XIE
1
;
Ziyu LIU
;
Shunping LI
Author Information
1. 山东大学齐鲁医学院公共卫生学院卫生管理与政策研究中心国家卫生健康委员会卫生经济与政策研究重点实验室山东大学健康偏好研究中心,济南 250012
- Keywords:
rare diseases;
legal system;
countermeasures and recommendations
- From:
JOURNAL OF RARE DISEASES
2024;3(3):405-410
- CountryChina
- Language:Chinese
-
Abstract:
The prevention and treatment of rare diseases is an important public health issue in China.Rare diseases are characterized by diverse types,complex conditions,and heavy burdened to patients,leading to a series of issues in the urgent demand in prevention and treatment of rare diseases in terms of individuals'health and the national responsibilities.Related legislation is an effective way to promote multi-disease preven-tion and treatment of rare diseases,and patients'protection in multi-level.We tease out and analyze the legal system on national and local level related to rare diseases,and recommend the coping strategies and give sug-gestions to improve and optimize the legal system for the prevention and treatment of rare diseases from the three dimensions of completeness,normalization and feasibility of the legislation,hoping to improve the competence of China's rare disease prevention and treatment and raise the level of protection for the patients.
