Diagnosis and treatment procedures and health management for patients with hereditary angioedema.
10.3760/cma.j.cn112150-20230509-00359
- VernacularTitle:遗传性血管性水肿患者诊疗流程与健康管理模式
- Author:
Min ZHOU
1
;
Xin LUO
2
;
Qi Lin ZHOU
1
;
Wen Hao ZHOU
2
;
Rui ZHENG
2
;
Ya Na ZHANG
2
;
Xi Fu WU
2
;
Shuo WU
2
;
Jing SU
1
;
Guo Wei XIONG
1
;
Yun CHENG
1
;
Ya Ting LI
3
;
Ping Ping ZHANG
3
;
Kun ZHANG
4
;
Min DAI
4
;
Xue Kun HUANG
5
;
Zhao Hui SHI
2
;
Jin TAO
6
;
Yu Qi ZHOU
7
;
Pei Ying FENG
8
;
Zhuang Gui CHEN
3
;
Qin Tai YANG
5
Author Information
1. Department of Allergy, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China.
2. Department of Otolaryngology, The Third Affiliated Hospital of Sun Yat-sen University, Guangzhou 510630, China.
3. Department of Allergy, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China Department of Pediatrics, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China.
4. Department of Allergy, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China Department of Traditional Chinese Medicine, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China.
5. Department of Allergy, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China Department of Otolaryngology, The Third Affiliated Hospital of Sun Yat-sen University, Guangzhou 510630, China.
6. Department of Allergy, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China Department of Gastroenterology, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China.
7. Department of Allergy, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China Department of Respiratory and Intensive Care, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China.
8. Department of Allergy, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China Department of Dermatology and Cosmetic Surgery, The Third Affiliated Hospital of Sun Yat-Sen University, Guangzhou 510630, China.
- Publication Type:Journal Article
- MeSH:
Humans;
Angioedemas, Hereditary/drug therapy*
- From:
Chinese Journal of Preventive Medicine
2023;57(8):1280-1285
- CountryChina
- Language:Chinese
-
Abstract:
As a recognized rare and highly fatal disease, hereditary angioedema (HAE) is difficult to diagnose and characterized by recurrent edema involving the head, limbs, genitals and larynx, etc. Diagnosis of HAE is not difficult. However, low incidence and lack of clinical characteristics lead to difficulty of doctors on timely diagnosis and correct intervention for HAE patients. Therefore, it is crucial to improve the awareness of this disease and prevent its recurrence. for HAE patients. In view of absent cognition of doctors and the general public on HAE, patients often suffer from sudden death or become disabled due to laryngeal edema which cannot be treated in time. Thus, based on the Internet mobile terminal platform, the team set up an all-day rapid emergency response system which is provided for HAE patients by setting up "one-click help". The aim is to offer optimization on overall management of HAE and designed the intelligent follow-up management to provide timely assistance and specialized suggestion for patients with acute attacks.
