Exploration of ethical issues in neuroimaging data sharing
10.12026/j.issn.1001-8565.2024.06.08
- VernacularTitle:神经成像数据共享中的伦理问题探究
- Author:
Zhoukang WU
1
;
Xiaosong HE
Author Information
1. 中国科学技术大学科技哲学系,安徽 合肥 230026
- Keywords:
neuroimaging;
data sharing;
shared entity;
ethical issues;
responsibility ethics
- From:
Chinese Medical Ethics
2024;37(6):669-676
- CountryChina
- Language:Chinese
-
Abstract:
In recent years,countries around the world have invested a lot of resources in neuroimaging research on brain function and diseases.The abundant and more easily accessible neuroimaging data will have a profound impact on the research of cognitive neuroscience and psychiatry,thereby assisting the development of the diagnosis and treatment of brain diseases.At present,neuroimaging data sharing is gradually becoming a trend,but it is also worth considering of some unique ethical issues that come with it.Therefore,from the four shared entities of the public,researchers,users,and data centers,this paper sorted out the ethical issues in neuroimaging data sharing,and deeply analyzed the reasons for these issues.Based on the responsibility ethics and combined with the guidance of the Belmont principles,governance responses were proposed,including strengthening the construction of neuroethics committees,improving informed consent models,building data sharing infrastructure,establishing data privacy protection mechanisms,and introducing regulatory protections,to provide a certain reference for promoting the neuroimaging data sharing and maximizing the contribution of participants.
