Analysis of Open Sharing Strategies of Biomedical Scientific Data Based on the Multiple-case Study

VernacularTitle:基于多案例研究的生物医学科学数据开放共享策略分析
Author: Jialin WAN ¹ ; Xiaofeng JIA ; Zhimin HU
Author Information

1. 中国医学科学院/北京协和医学院卫生健康管理政策学院北京 100730
Keywords: scientific data; biomedical data; data sharing; case study
From: Journal of Medical Informatics 2024;45(2):20-25
CountryChina
Language:Chinese
Abstract: Purpose/Significance To put forward strategies for the open sharing of biomedical scientific data and provide theoretical support for the sustainable development of scientific data in China.Method/Process The paper adopts the multiple-case study method to analyze open sharing practices of four international typical biomedical scientific data platforms,including UK Biobank,National Center for Biotechnology Information(NCBI),Global Initiative on Sharing All Influenza Data(GISAID)and Cortellis Drug Discovery Intelli-gence(CDDI).Result/Conclusion Suggestions are proposed based on three processes of before,during and after data sharing.In the construction of data resources,the division of data rights and rights subjects should be determined.The open use of data should be differ-entiated according to data attributes.In terms of data ecology construction,mechanisms and measures to promote data value-added should be formulated.