A qualitative study of self-management dilemmas in adults with emerging ankylosing spondylitis
10.3760/cma.j.cn211501-20230430-01050
- VernacularTitle:成人初显期强直性脊柱炎患者自我管理困境的质性研究
- Author:
Di ZHU
1
;
Zhiling ZHAO
;
Yan CHEN
;
Ling YUAN
;
Qiuju CHEN
;
Renju XU
;
Xiaohan NIE
Author Information
1. 南京鼓楼医院风湿免疫科，南京 210008
- Keywords:
Nursing care;
Qualitative research;
Self-management;
Ankylosing spondylitis;
Emerging adulthood;
Dilemma
- From:
Chinese Journal of Practical Nursing
2024;40(2):117-122
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the experience of self-management dilemma ofadults with emerging ankylosing spondylitis, and to provide reference for the construction of self-management intervention strategies for emerging adults with ankylosing spondylitis.Methods:Descriptive phenomenology was used to conduct in-depth interviews with 14 adults with emerging ankylosing spondylitis in the Rheumatology and Immunology Department of Drum Tower Hospital Affiliated to Medical College of Nanjing University from August 2022 to March 2023. The interview data were analyzed by Colaizzi′s seven-step analysis method.Results:A total of 14 patients completed the interview,10 males, 4 females, aged 21-30 years. In adults with emerging ankylosing spondylitis, there were dilemmas of role maladjustment and disease management disorder, including role maladjustment of disease management and social role maladjustment. Barriers to disease management included weak self-management awareness, insufficient support for self-management information, inadequate self-management skills, and poor compliance with self-management behaviors.Conclusions:The role adaptation and self-management ability of adults with emerging ankylosing spondylitis are seriously inadequate. It is urgent to construct health management strategies for adults with emerging ankylosing spondylitis to help them improve the level of role adaptation and disease management.
