Lived experience and inner needs of patients with young-onset dementia: a qualitative Meta-synthesis
10.3760/cma.j.cn211501-20230424-01004
- VernacularTitle:年轻型痴呆症患者生活体验与内心需求质性研究的Meta整合
- Author:
Yuxin ZHU
1
;
Chongqing SHI
;
Yixin WANG
;
Chan CAI
Author Information
1. 武汉科技大学医学院，武汉 430065
- Keywords:
Qualitative research;
Meta-analysis;
Young onset dementia;
Early onset dementia;
Lived experience;
Inner needs
- From:
Chinese Journal of Practical Nursing
2023;39(36):2862-2869
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To systematically evaluate the lived experience and inner needs of patients with young-onset dementia and to provide a basis for developing targeted interventions in clinical practice.Methods:Qualitative studies on the lived experience and inner needs of patients with young-onset dementia were retrieved from PubMed, Embase, Web of Science, Cochrane Library, PsycINFO, China National Knowledge Internet, VIP, Wanfang Database, and China Biology Medicine disc from the start to September 2022.Two investigators trained in evidence-based knowledge screened the literature inclusion and exclusion criteria independently and rigorously, and used an aggregative synthesis to integrate and categorize the results.Results:A total of 11 articles were included, 33 results were extracted. These results were clustered into 8 categories, and 3 integrated results were synthesized: patients faced difficulties and challenges in daily life, social activities and work,experienced severe psychological burden and stigma; there were differences in coping styles among patients with different emotional experiences, manifesting as avoidance, confrontation, and adoption of positive coping styles; patients had unmet needs in multiple dimensions such as poor communication between doctors and patients, lack of peer support, lack of age-appropriate services, and desired to obtain support from multiple sources.Conclusions:The community, hospital, and society should be fully connected to provide support for patients with young-onset dementia to reduce stigma, improve the diagnostic process, and encourage positive coping. More research is needed in the future to help healthcare professionals understand the experience and needs of patients with young-onset dementia, with the aim of improving the quality of life of patients.
