Relationship between fear of progression and quality of life among adult patients with pulmonary hypertension: the chain mediating role of family resilience and perceived social support
10.3760/cma.j.cn211501-20230131-00216
- VernacularTitle:成年肺动脉高压患者恐惧疾病进展与生命质量的关系：家庭弹性及领悟社会支持的链式中介效应
- Author:
Mengqi LIU
1
;
Zhiwei WANG
;
Zeping YAN
;
Qian LIANG
;
Xiaoli WANG
;
Jiurui WANG
;
Xiaorong LUAN
;
Jing LI
Author Information
1. 山东大学护理与康复学院，济南 250000
- Keywords:
Adult;
Quality of life;
Pulmonary hypertension;
Perceived social support;
Family resilience;
Fear of progression;
Influencing factor
- From:
Chinese Journal of Practical Nursing
2023;39(27):2105-2112
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the mediating roles of family resilience and perceived social support between fear of progression and quality of life in patients with adult pulmonary hypertension, so as to provide guidance for grassroots medical staff to deeply understand and improve the long-term quality of life of adult pulmonary hypertension patients.Methods:Using a convenience sampling method, 219 adult pulmonary hypertension patients who attended Qilu Hospital, Shandong University from July 2021 to February 2022 were selected for a cross-sectional study using the World Health Organization Quality of Life Questionnaire Abbreviated Version (WHOQOL-BREF), Perceived Social Support Scale (PSSS), Shortened Chinese version of the Family Resilience Assessment Scale (FRAS-C) and Chinese version of Fear of Progression Questionnaire-Short Form (FoP-Q-SF) for investigation. A structural equation model was established to evaluate the mediating effect of family resilience and perceived social support on fear of progression and quality of life.Results:The scores of WHOQOL-BREF, PSSS, FRAS-C, and FoP-Q-SF were (45.85 ± 10.22), 66(56, 75), 94(89, 97) and 39(32, 46) points in adult pulmonary hypertension patients. The total scores of WHOQOL-BREF were negatively correlated with FoP-Q-SF ( r = -0.63, P<0.01), and positively correlated with FRAS-C and PSSS ( r=0.54, 0.46, both P<0.01). Family resilience played a partial mediating role between fear of progression and quality of life, accounting for 13.43% of the total effect. Family resilience and perceived social support played a chain mediating role between fear of progression and quality of life, accounting for 2.71% of the total effect. Conclusions:Family resilience-perceived social support play mediating roles between fear of progression and quality of life, healthcare workers can alleviate fear of progression and improve quality of life by promoting the levels of family resilience and perceived social support of adult pulmonary hypertension parents.
