Qualitative Study of Primary Caregiver Load Experience in Colorectal Stoma Patients
10.12026/j.issn.1001-8565.2022.03.07
- VernacularTitle:结直肠造口患者主要照顾者负荷体验质性研究
- Author:
Wenqing DAI
1
;
Jingrong WANG
2
;
Xia XIN
3
;
Hui FAN
4
;
Xianzhen JIN
4
Author Information
1. Medical College, Yan’an University, Yan’an 716000, China
2. College of Nursing, Shaanxi University of Chinese Medicine, Xianyang 712046, China
3. Nursing Department, the First Affiliated Hospital of Xi’an Jiaotong University, Xi’an 710061, China
4. Department of General Surgery, the First Affiliated Hospital of Xi’an Jiaotong University, Xi’an 710061, China
- Publication Type:Journal Article
- Keywords:
Colorectal Stoma;
Primary Caregiver;
Load Experience;
Qualitative Study
- From:
Chinese Medical Ethics
2024;35(3):273-276
- CountryChina
- Language:Chinese
-
Abstract:
To deeply explore the load experience of primary caregivers of colorectal stoma patients, analyze their psychological load, understand their load experience when caring for patients, so as to provide theoretical basis for promoting patients’ home rehabilitation and continuous nursing. A semi-structured interview was conducted with the primary caregivers of 10 patients with permanent stoma in a tertiary hospital in Xi’an using a phenomenological research method, and the data were summarized and refined by Colaizzi 7-step analysis. A total of four themes were extracted: complex emotional reactions, lack of knowledge about stoma care, a huge care load on the shoulder, and social and financial support needed. The primary caregivers of colorectal stoma patients have a certain degree of care load in the daily care of the patients. Health care professionals should pay attention to the psycho-emotional changes of these individuals and take targeted interventions to reduce the psychological load of the caregivers and improve the quality of life of the patients and their caregivers.