Quality of Life Among Cancer Patients Who Discharged Home from Inpatient Hospices, Comparing with Those of Cancer Patients Who Died at HospicesA Nation-ｗide Survey Among Bereaved Families of Advanced Cancer Patients

Takuya Odagiri; Tatsuya Morita; Hiroaki Ito; Yuji Yamada; Mika Baba; Katsuhiro Narumoto; Yasue Tsujimura; Tatsuhiko Ishihara

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Quality of Life Among Cancer Patients Who Discharged Home from Inpatient Hospices, Comparing with Those of Cancer Patients Who Died at HospicesA Nation-ｗide Survey Among Bereaved Families of Advanced Cancer Patients

VernacularTitle:緩和ケア病棟で死亡したがん患者と比較した，緩和ケア病棟から在宅に退院したがん患者のQOL：遺族への自記式アンケート全国調査
Author: Takuya ODAGIRI ¹ ; Tatsuya MORITA ² ; Hiroaki ITO ³ ; Yuji YAMADA ⁴ ; Mika BABA ⁵ ; Katsuhiro NARUMOTO ⁶ ; Yasue TSUJIMURA ⁷ ; Tatsuhiko ISHIHARA ⁸
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1. Palliative Medicine, Gifu Seino Medical Center Ibi Kosei Hospital
2. Palliative and Supportive Care Division, Seirei Mikatahara General Hospital
3. Palliative Medicine, Gifu Prefectural Tajimi Hospital
4. Aiwa Hospital
5. Palliative Medicine, Suita Tokushukai Hospital
6. Palliative Medicine, NHO Shikoku Cancer Center
7. Palliative Medicine, Japanese Red Cross Ise Hospital
8. Palliative Medicine, Okayama Saiseikai General Hospital
Keywords: palliative care unit; discharge; QOL; quality of care; transitional care
From:Palliative Care Research 2024;19(1):23-32
CountryJapan
Language:Japanese
Abstract: Objectives: We compared cancer patients who were discharged home from inpatients hospices (Home), and who died at hospices (PCU) as a comparison group regarding patients’ quality of life, to clarify the patients’ experience after discharge home. Methods: We send self-reported questionnaires to bereaved families of cancer patients who were discharged home from 12 Japanese nation-wide hospices and died without readmission to the hospicies during Janually 2010 and August 2014. We used bereaved families’ data of patients who died at the same hospices during the same period of J-HOPE3 study. Results: We sent 495 questionnaires (returned 47.3%) and analyzed data of 188 as Home. The data of 759 bereaved families of J-HOPE3 study were also analyzed as PCU. In Good Death Inventory, Home was associated with higher score on some items (staying at favorite place, having pleasure, staying with families and friends, being valued as a person), and PCU was associated with higher score on being free from pain or other physical distress. Conclusions: Patients who were discharged home from inpatient hospices had good environmental QOL, but hospices may be better in palliation of symptoms.