Qualitative Study on Disease Communication Experience between Parents and Cancer Children from the Perspective of Familism
10.12026/j.issn.1001-8565.2023.04.16
- VernacularTitle:家庭主义视角下父母与癌症患儿疾病沟通体验的质性研究
- Author:
Minrui NIU
1
;
Shuwan DONG
2
;
Huicai WANG
3
;
Xia CHEN
4
;
Jinrong CHEN
1
;
Ailipati· TAILAITI
5
;
Meng LYU
1
Author Information
1. School of Nursing, Xinjiang Medical University, Urumqi 830011, China
2. Department of Pediatric, the First Affiliated Hospital of Xinjiang Medical University, Urumqi 830054, China
3. Department of Education and Teaching Management, the First Affiliated Hospital of Xinjiang Medical University, Urumqi 830054, China
4. Department of Psychological Medicine, the First Affiliated Hospital of Xinjiang Medical University, Urumqi 830054, China
5. School of Health Care and Management, Xinjiang Medical University, Urumqi 830011, China
- Publication Type:Journal Article
- Keywords:
Familism;
Hospice Care;
Disease Communication;
Cancer;
Children
- From:
Chinese Medical Ethics
2023;36(4):449-455
- CountryChina
- Language:Chinese
-
Abstract:
【Objective:】 To explore the disease communication between cancer children and their parents from the perspective of their parents. 【Methods:】 Using qualitative description method and semi-structured interview, 16 parents from the pediatric oncology department of a tertiary A hospital were collected. Colaizzi 7-step method was used to analyze the interview data and summarize the theme. 【Results:】 Four themes were summarized, including perception of the psychological changes of children after illness, changes in the future planning of children, different attitude towards informing children’s diseases, different opinions on children’s participation in medical decision-making. 【Conclusions:】 The awareness of disease communication and medical decision-making in cancer families is insufficient. It is difficult for parents to communicate actively and effectively with their cancer children, and the children’s families are unable to make clear plans for the children’s future. Therefore, it is necessary to construct a theoretical system of disease communication and medical shared decision-making from the perspective of Chinese familism, and strengthen the promotion of scientific communication methods.
