Development and Application of Comprehensive Evaluation System in the Treatment of Children with Hemophilia in China
10.12376/j.issn.2097-0501.2022.04.004
- VernacularTitle:综合评价体系在中国儿童血友病治疗中的发展与应用
- Author:
Wanru YAO
1
;
Jishui ZHANG
2
;
Runhui WU
1
Author Information
1. Department 2 of Hematology, National Center for Children's Health, Beijing Children's Hospital, Capital Medical University, Beijing 100045, China.
2. Department of Psychiatry, National Center for Children's Health, Beijing Children's Hospital, Capital Medical University, Beijing 100045, China.
- Publication Type:Journal Article
- Keywords:
hemophilia;
evaluation system;
quality of life assessment
- From:
JOURNAL OF RARE DISEASES
2022;1(4):380-385
- CountryChina
- Language:Chinese
-
Abstract:
Being a hereditary bleeding disorder, hemophilia is characterized by spontaneous bleeding, especially joint bleeding. The treatment outcome is a comprehensive evaluation system of the following three aspects: bleeding, musculoskeletal structure (imaging), and function-activity participation. Multidisciplinary testing and corresponding scales are needed in the assessment. Among them, the quality of life assessment of hemophilia patients is particularly important, through general questionnaires and hemophilia-specific questionnaires. Canadian hemophilia outcomes-Kids' life assessment tool(CHO-KLAT), a special quality of life assessment tool for children with hemophilia, is the most widely used. This paper briefly describes the development and application of comprehensive evaluation system of the children with the disease.
