Transitional home care needs of primary caregivers for children with enterostomy: a qualitative study
10.3760/cma.j.cn115682-20230910-00990
- VernacularTitle:肠造口患儿主要照顾者过渡期居家护理需求的质性研究
- Author:
Yongyan LIU
1
;
Qian XIAO
Author Information
1. 首都医科大学护理学院，北京 100069
- Keywords:
Enterostomy;
Child;
Caregivers;
Transition period;
Needs;
Qualitative research
- From:
Chinese Journal of Modern Nursing
2024;30(23):3105-3110
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the transitional home care needs of caregivers for children with enterostomy, so as to provide a basis for promoting caregiver role adaptation and improving care for children.Methods:From January to September 2021, purposive sampling was used to select 16 primary caregivers of children with enterostomy admitted to the Children's Hospital, Capital Institute of Pediatrics for face-to-face semi-structured in-depth interviews. Content analysis method was used to analyze data.Results:Four types of needs were extracted. Physiological needs included procedural colostomy routine care, prevention and treatment of colostomy complications, management of the daily life of children with enterostomy, and support for recovery. Information needs contained assessment and response information on situational colostomy care issues, information on colostomy care products, and methods of obtaining colostomy care information. Emotional and spiritual needs covered coping with the pressure of colostomy care, reducing stigma, alleviating social pressure, exploring independently and actively adapting. The diverse social network support needs comprised peer support, family support, and medical and nursing staff support.Conclusions:The needs of caregivers for children with enterostomy are diverse and strong. Comprehensive and targeted services and support should be provided to promote the adaptation of caregiver roles and the improvement of the child's health.
